Parenting Issues

Dwarfism
Source/Author: Reviewed by: Linda Nicholson, MS, MC 
Web-based (Lay)
Written for parents of children with short stature/dwarfism.

Emotional Responses to Diagnosis
Source/Author: The MPS society 
Support Group
Discussion of the emotions that parents and families with their child is diagnosed (with an MPS disorder). This information is applicable for any parent or family whose child is being diagnosed with a genetic condition, including dwarfism.

Family Coping Strategies
Source/Author: The MPS society 
Support Group
Discussion of ways to help with your child who has a genetic disorder and their unaffected siblings understand the child's condition and what to expect. Also has parenting tips for children with special needs and their unaffected siblings, especially in regards to "making things fair" for the unaffected sibling(s).

Managing Medical Care When Your Child Has OI
Source/Author: Daniel Wright, CFP, OI Breakthrough Newsletter
Support Group
Good overview of how to manage the medical care of a child with a complex medical condition such as OI. 

Writing A Letter of Support
Source/Author: The MPS society 
Support Group
Discussion of how a family can work with medical providers to get letters of support for treatment or equipment that their child needs. Click on article title to download pdf.